{"id":156,"date":"2021-06-11T10:45:18","date_gmt":"2021-06-11T10:45:18","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=156"},"modified":"2026-01-22T03:54:03","modified_gmt":"2026-01-22T03:54:03","slug":"welcome-test-page","status":"publish","type":"page","link":"https:\/\/livingwitheagle.org\/","title":{"rendered":"Finding support for Eagle Syndrome? Connect with people like you."},"content":{"rendered":"

\"A<\/p>\n

Living with Eagle<\/strong>\u00a0is an online patient support community that is powered by BensFriends.org<\/a>,<\/strong><\/em> a network of patient support communities for rare diseases. Our mission at Ben\u2019s Friends <\/em>is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n

Eagle Syndrome is elongation of the styloid process which is actually calcification of the stylohyoid ligament. The s-h ligament runs from the tip of the styloid processes to the lesser horns of the hyoid bone. The hyoid bone also has two greater horns. Hyoid bone syndrome arises from the greater horns becoming elongated or thickening such that the hyoid bone loses some of it\u2019s movement & begins to press on some of the same nerves that elongated styloid and \/ or calcified s-h ligaments irritate.<\/p>\n

The hyoid bone can also become \u201ctethered\u201d by calcified stylohyoid ligaments. Under normal conditions it moves freely up and down and a little side to side when we swallow, talk, laugh, cough, sneeze, breathe, etc. When it loses the ability to move as it needs to, pain results.<\/p>\n

This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.<\/p>\n

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